Today is a big day...
My daily meds consist of synthroid, lexapro, arava, plaquenil, tramadol, prednisolone, and nexium. This combination came from 4 doctors and 3 years of medical pokes and prods. You would think that these miracle cures would break me free from my pain and exhaustion. Not so! I've been spiraling downward for 6 months and my rheumy decided it was time to pull out the big gun... imuran. I say big gun because before he would prescribe the drug he required me to read a handout and research the medication and I had to be genetically tested for a specific trait that might cause problems. I have to say that it sounds bad, but at least it didn't have the skull and crossbones that methotrexate had on the information page. Being 97 pounds (up 2 pounds thanks to an increase in steroids), I'm a little leery of the "vomiting" side effect listed on every piece of information on the drug. I clearly don't need to loose any more weight....but today is the big day...this is the drug that is going to help me become normal again...right?
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Hi Beth,
ReplyDeleteI'm sorry you have to deal with this. I know how devastating it can be when you're diagnosed with something you know almost nothing about. I was diagnosed almost 14 years ago, and I had never heard of Lupus. I can't give you all the answers, but I can tell you my experience with it as well as some of the websites that help me deal with it. You can find my blog site at myawakenedlife.blogspot.com and on there you will find a link to my page on a website that is specifically for Lupus patients called WeAreLupus.org.
I have been on plaquenil since my diagnosis and for the most part it has helped. There have been times that the Lupus wasn't under control so I had to be put on meds like Prednisone, Methotrexate, and Cellcept. I can tell you your Rheumy sounds great, having you tested and giving you sound warning before putting you on different meds instead of whipping out the script pad and scribbling a Rx like it's a recipe for cookies. I have also been prescribed Tramadol as well as Topamax. I am looking forward to sharing any information I can with you. Take care!